Our annual, virtual event exclusively for the sons, daughters and children of YOD.
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empowering sons, daughters, children of YOD
For those who have a parent living with or who has lived with younger-onset dementia. SUMMIT offers a range of sessions, co-designed and co-led by our
Youth Leads & Dementiacators (an 'educator'; expert in the field).
Over 250 young people, from 16 countries at our 2025 virtual SUMMIT.
SUMMIT Program
click here to view Summit ScheduleSUMMIT Registration
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SUMMIT Registration
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growing young leaders
A SUMMIT Youth Lead is a young person of a parent affected by younger-onset dementia who designs and facilitates our SUMMIT with trust, insight and empathy.
40 Youth Leads from SUMMIT 2025

spreading knowledge
A dementiacator is an individual who is knowledgeable in the dementia space through lived experience and/or field experience with a passion for educating others.
35+ Dementiacators from our SUMMIT 2025
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healing and educating
This discussion will include what we know about hereditary factors, genetic testing, and what it means for young people & their families affected by younger-onset dementia.
This session is a powerful, hands-on art experience that brings our community together! We will use creative expression to share our unique stories and reflect. As we contribute to a collective art piece, we’ll explore the connections between our individual experiences & the strength we build together.
A panel discussion amongst experts from across the globe designed to support you at every stage of the journey-offering essential financial, medical, and legal insights, practical tools for caregiving, strategies for navigating decisions, and guidance on end-of-life planning.
Wisdom This session offers a meaningful space for reflection, connection, and creative expression-whether through art, writing, or movement-to explore our unique stories and celebrate the strength in our journeys.
A supportive space to explore healthy ways of understanding, expressing, and navigating grief and loss through meaningful conversations and practical tools.
amplifying collective wisdom
youth-designed tool to dismantle stigma
EmpowermentPLUS
Our EmpowermentPLUS model is a youth-designed tool to
end dementia stigma.
This tool emerged from SUMMIT 2024.
together we heal & advocate


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